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Advance CRMO Research.
Simplify Your Care.

Track symptoms, generate clinician-ready reports, and contribute to research that helps every CRMO family — including yours. Free for patients and caregivers.

Coming soon to Apple & Android

Download on the
App Store
GET IT ON
Google Play

Your Doctor Needs Data,
Not Just Notes

Generic tracking apps give you free-text notes. Rheumatologists need structured data: pain location, PROMIS scores, medication timelines, and flare patterns in a format they can actually use.

Built for patients,
designed for care

Structured Flare Tracking

Capture pain location, severity, triggers, and treatment response in a format researchers and clinicians can use—not just free-text notes.

PROMIS-Based Outcomes

Track function, not just pain. Validated measures (PROMIS) that matter to clinicians and research teams.

Visit-Ready Reports

One-page summaries formatted for rheumatology appointments. Show trends, medications, and flares at a glance.

Voice → Structured Data

Speak naturally, extract clinically relevant details automatically. Turns "my knee hurts" into structured pain location, severity, and timing.

Diagnostic Journey

Document your path to diagnosis to help other families recognize CRMO sooner and inform research on diagnostic delays.

Contribute to Research

Opt-in to share anonymized data with CARRA and research partners. Help build the evidence base for FDA-approved treatments.

Why Tracking Matters
Beyond Your Family

CRMO has no FDA-approved treatments because there's not enough real-world data to prove what works.

Every flare you log, every medication response you record, every diagnostic delay you document — it all helps build the evidence base needed for better care.

~300

Estimated new CRMO cases per year in the US

2-3 years

Average time to diagnosis from first symptoms

0

FDA-approved treatments specifically for CRMO

When you track your data in CRMO Care and opt-in to research, you're helping researchers understand patterns, accelerate diagnosis for other families, and build the evidence needed for clinical trials and FDA approvals.

Understanding
CRMO together

CRMO affects each patient differently. Our platform provides the tools needed to track, understand, and communicate your unique symptom patterns with your healthcare team.

Evidence-based tracking methods
Developed with medical professionals

Our Commitment to Privacy and Security

CRMO Care is designed with the same principles that guide HIPAA — protecting your privacy, ensuring data security, and giving you full control of your information.

  • All data encrypted in transit (TLS 1.3) and at rest (AES-256).
  • Row-level database security ensures complete data isolation between users.
  • PHI-free logging and error tracking—no health data in system logs.
  • Business Associate Agreements with all AI and data processing vendors.
  • You can download or delete your data at any time.

CRMO Care is not yet a HIPAA-covered entity, but we implement HIPAA-aligned security and privacy practices across all systems.

Free for Patients & Caregivers

Take charge of your care

Join patients who are already using CRMO Care to better understand and manage their symptoms. No hidden fees. No premium tiers.

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